Operation Kidney Bean

2018-04-24 22.53.56

I Need Your Help:

I am Shana Pereira and I have end-stage renal failure due to chronic kidney disease (“CKD”).  It’s a silent disease.  It crept up on me suddenly and undetected, but the disease moves fast.  One year later, I am on dialysis and still searching for an angel to step forward and save my life by donating one of their kidneys. Any blood type works as there are kidney exchanges where Cedars Sinai will pair a person up with the best kidney donor out of a group of people. What is therefore needed is a kidney donor who passes the donor test.

Tall order, I know.  It’s a big ask.  So, if you are willing to be tested, please see information below  and if you’re not, I understand and am grateful you’re reading my story.  And, I am asking for your help in another way.  There’s something important you can do to help me (and others with a similar need), even if you’re not in a place to consider donating:

Simply spread the word about my need for a kidney.

I am told that the more people who know of my need, the better my chance is of reaching a person willing to be an altruistic donor.  So, now it’s all about getting the word out to as many people as possible, and I’ll show you how to do that in this post.

Who I am:

I’m just like so many other 30-something women living in Los Angeles…hard working, focused on my career, navigating the single life, and always trying to do more… more yoga, more meditation, more journaling, more apple cider vinegar, lose more weight, make more money, read more books, be a better person, donate more, make more of an impact on the world.  I’m known as a power house who “gets shit done”….a “leave a legacy” kind of woman.  So much so, that my friends nicknamed me Olivia Pope after the lead character on ABC’s Scandal.

Despite that, this disease has me feeling scared, insecure, vulnerable…like my own life is out of my hands now.  I am humbled…and I have to ask for help…something I’m not used to (or at all comfortable with).  But, I am confident in the spirit of human kindness, and so inspired by all the amazing people who want to help – like you!

 

How you can help:
Take 15 minutes to tell the world about this website  (Operationkidneybean.com).

  • Email: Send this website to your friends (all of them) by email.
  • Facebook: Post a small note on Facebook with a link to this website.
  • LinkedIn: Post a small note on LinkedIn with a link to this website.
  • Instagram:  Share a picture of someone you love who you would want to get a kidney if they needed it, and include the link to this website in your profile.
  • Other Social Media Sites: Post a small note with a link to this website.
    And ask your contacts, readers, friends and acquaintances to do the same (to give this webpage exponential distribution).

Why this is So Serious – My Options:

Most people have two well-functioning kidneys but can lead a full and equally healthy life with just one kidney.  Both of my kidneys are almost fully shut down by CKD.  So, medically I now have only two options to continue living:

  • dialysis (life expectancy about 5 years)
  • deceased donor (life expectancy 5-12 years)
  • transplant (a new lease on life of 20+ years)

According to USRDS data, Kidney transplant recipients fare far better than dialysis patients. I need those additional years in order to continue helping others.

My family members are all in Australia and I am here on living on my own.
Also, if a willing donor is not an exact match, through an arrangement called “Paired Kidney Donation” (kidney swapping) a donor who is not a match for me might be a match for someone else and I would be eligible to receive that person’s donor’s kidney that would be a match for me.

If You’d Like More Information:

For more information, see Cedars Sinai  “Donating an Organ – Cedars Sinai.”
Cedars Sinai – California

To Speak with Someone Confidentially:

If you’d like to speak with someone confidentially (without disclosing your inquiry to Shana Pereira), please call Cedars Sinai and ask for Miguel* at (310) 423-4718. The person calling will need my Medical Record Number:  200914231

Speaking with a Cedars staff member is much better than speaking with me.  They know far more than I do and you will get better information from them than from me.

Keep in mind that a confidential phone call to Cedars Sinai does not come with any obligations to proceed further, so please feel free to contact Cedars Sinai.
______________
*Cedars-Sinai is a nonprofit academic healthcare organization serving the diverse Los Angeles community and beyond.
Note: It is illegal to exchange money for a kidney. No such request will be granted any consideration.

 

 

16 thoughts on “Operation Kidney Bean

  1. Sharon Raguse May 19, 2018 — 9:08 am

    Hi Shana
    I had no idea darling. Sending you much love & strength. Will pass on far & wide & in the meantime pray a suitable donor is discovered soon.

    Xxxx
    Matt & Sharon

    Like

    1. Thank you Matt & Sharon on behalf of Shana. What would make a difference your her is to ask you to share this website http://www.operationkidneybean.com with your friends & network and ask each of them to do the same. If we can get this shared over 1,000 times we believe we can locate the Angel 😇 who will be willing to donate a kidney and share life.

      ~Shana’s lifeline team

      Like

  2. Hi Shana –
    I used to work at Resolution Media and saw your story via a 4C Insights Tweet. I looked on the Columbia Surgery website you linked to in your blog post to learn more about getting tested to become a donor, but the website does not link to the medical questionnaire required to start the process of seeing if I’m a match.

    Do you know where I find the questionnaire?

    Thanks!
    maddie

    Like

    1. Please contact Miguel Can @ Cedars Sinai at 310 423 4718 or email him @
      Miguel.Can@cshs.org

      Thank you for your willingness to get tested.

      ~Shana’s well-being team

      Like

      1. Will do, thanks!

        Liked by 1 person

  3. Kayleen Allen May 26, 2018 — 6:51 am

    Hi Shana,
    I’m devastated by your news . I’m so so sorry. I will share, but also I will personally get tested. Let’s see where this leads us. Much love and gentle hugs to you beautiful lady. Kayleen xxxx

    Like

    1. Thank you for your kind words. I can imagine how much of a shock it was to hear this news. We are committed to finding her a donor. Thank you for being willing to get tested. Please let us know when you have connected. They keep that information confidential.

      -Shana’s well being team

      Like

  4. Talitha Konieczny June 9, 2018 — 1:46 pm

    I live in Illinois, but I’m more than willing to get tested.

    Like

    1. Thank you so much. Please contact Miguel at Cedars Sinai M-F at 310-423-4718. You will need her Medical ID # 200914231. This is confidential and they do not update us on what is happening. Please keep us updated on what happens. You are an angel. Thank you.
      ~Shana’s well-being team

      Like

  5. Bobbie Crenshaw June 14, 2018 — 11:19 am

    Shana,
    I live in Florida. I am praying for you and hoping for a miracle. How does one go about getting tested? My blood type is B+. If that’s a possible match please contact me. I would love to help.😊

    Liked by 1 person

    1. If you’d like to speak with someone confidentially (without disclosing your inquiry to Shana Pereira), please call Cedars Sinai and ask for Miguel* at (310) 423-4718. The person calling will need my Medical Record Number: 200914231

      Like

  6. Paula Westerdahl June 14, 2018 — 12:26 pm

    I would love to donate one of my kidneys to someone in need. I don’t really know how to go about doing so. Financially I can’t afford the medical bills this would entail and i live paycheck to paycheck and can’t afford to be off from my job for any extended length of time! If anyone knows how to go about this in a way that won’t leave me homeless I’m all ears!

    Like

    1. The insurance pays for everything if you are a match. If you’d like to speak with someone confidentially (without disclosing your inquiry to Shana Pereira), please call Cedars Sinai and ask for Miguel* at (310) 423-4718. The person calling will need my Medical Record Number: 200914231

      Like

  7. I would be willing to test to see if I’m a match and if I’m not I pray that a match will very, very soon be found. She’s absolutely beautiful and her life should and will go on. I’m 59 yrs old live in Georgia and have my aches and pains but reasonably healthy and have O negative blood…i am willing to help if it’s God’s will♡♡

    Like

    1. Thank you. Please call Cedars Sinai and ask for Miguel* at (310) 423-4718. The person calling will need Shana’s Medical Record Number: 200914231

      Like

    2. Thank you so very much.

      Also, if a willing donor is not an exact match, through an arrangement called “Paired Kidney Donation” (kidney swapping) a donor who is not a match for Shana might be a match for someone else and she would be eligible to receive that person’s donor’s kidney that would be a match for her.

      https://operationkidneybean.com

      please call Cedars Sinai and ask for Miguel* at (310) 423- 4718. The person calling will need my Medical Record Number:  200914231

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

search previous next tag category expand menu location phone mail time cart zoom edit close